Woman, 21, called 'twitchy' due to rare eyelid condition

Woman, 21, called ‘twitchy’ due to rare eyelid condition – Talktalk News

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Woman, 21, with a rare eyelid condition that makes her look as if she’s constantly WINKING at strangers opens up about  how she was teased and called ‘twitchy’Kaitlyn Best, from County Armagh, has rare eyelid condition Congenital PtosisHer right eyelid muscles did not form properly and a sling holds her eyelid open Dental nurse opened up about childhood bullying as it looks as if she is winking 

A woman with a rare droopy eyelid condition that makes it look as if she is always winking has opened up about her cruel childhood bullying.

Kaitlyn Best, from Lurgan in County Armagh, said she was called ‘twitchy’ by her classmates as a child due to Congenital Ptosis – which meant her right eyelid muscles did not form properly.

The 21-year-old was born with her right eyelid shut, and had surgery at two years old to open her eye with a permanent sling.

But because it is stitched open, Ms Best is unable to properly close her right eye. This gives the illusion of winking when she blinks. 

Kaitlyn Best, from Lurgan in County Armagh, said she was called ‘twitchy’ by her classmates as a child due to Congenital Ptosis – which meant her right eyelid muscles did not form properly

The 21-year-old was born with her right eyelid shut, and had surgery at two years old to open her eye with a permanent sling so both eyes could open together. Pictured: Ms Best after her latest surgery

She said: ‘Growing up I never knew there was a problem with my eye. I had to ask my mum what the people at school were talking about.  

‘When she pointed it out and explained to me I became a lot harder on myself, I then understood what they were talking about. It happened gradually but they started to explain why my eye was different.

‘They would call me twitchy. It was horrible, they would say that they would hate to look like me. It would make me not want to go to school.’

The dental nurse said she would wear her hair over her eye to cover it as a teenager, adding: ‘I was quite quiet and timid at school but now I can fend for myself.

‘However I can now say that I am happy with who I am now and what I am now, it gets easier as you get older. Life is too short to worry and let people get you down, you may as well enjoy life.’

The dental nurse said she would wear her hair over her eye to cover it as a teenager, adding: ‘I was quite quiet and timid at school but now I can fend for myself’

Pictured: Ms Best as a toddler before her most recent surgery to help her eyelid stay open

Ms Best had a second surgery in 2021 after the sling holding her eyelid up snapped.

She said she gets a lot of questions about her eye due to the rare condition – and even once went viral on TikTok.  

‘My condition went a bit viral when I had posted a TikTok video where I was looking down and someone asked me if I had a glass eye because my eyelid wasn’t following with my eye,’ she said.

‘I then explained what the condition was and it led to people asking me questions and it was nice to be able to raise awareness. I think it is what the world needs.

‘If you can’t beat them join them. I just want to make people aware and know that it isn’t a joke.

‘I can tell when I speak to people they are looking at it, but it doesn’t bother me. People are wise enough now to know to not point it out.’

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